Tatiana Ream Capstone

For my senior project, I decided to visit children at the Ronald McDonald house to do a little evening activity with them as well as give them little gifts.The activities I did was bingo and a little bit of arts and crafts along with Athalia Tan. In order to do this, I held a fundraiser in school to raise money to buy the materials needed. The Ronald McDonald House was kind enough to let me borrow their bingo set, all I had to do was buy them the gift bags. Inside the gift bags, I included things I thought could be fun to play with such as bubbles, play-dough and more. The purpose of this visit, was to see how the families cope and deal with either having a family member in the hospital everyday, or constantly having to return to the hospital.  
setting up
setting up
kids playing bingo with Ms. Hernandez
kids playing bingo with Ms. Hernandez

Annotated Bibliography :

Golics, Catherine Jane, et al. “The impact of patients' chronic disease on family quality of life: an experience from 26 specialties.” International Journal of General Medicine, Dove Medical Press, 2013. <www.ncbi.nlm.nih.gov/pmc/articles/PMC3787893/>

After reviewing this source, I noticed that it gave me a lot of background information. I also noticed that it was an interview put into a sort of document. At first I didn’t think that this source was reliable, but once I started getting more into it, I noticed it has a lot of references. I also saw statistics, and the interview questions that was talked about. Most of the interview questions that were asked answers my capstone question on how families feel about their relatives conditions. So maybe I can use some of these questions to ask the families I get in touch with.  

Good, Byron J., et al. “Impact of Illness on the Family: Disease, Illness, and the Family Illness Trajectory.” SpringerLink, Springer, New York, NY, 1 Jan. 1983, link.springer.com/chapter/10.1007/978-1-4612-5433-1_6.

Although this source is similar to the other source, I selected this one as well because it’s the impact instead of the effect. This gives me a lot of information on how illness affects the whole family and the different ways they can cope together as a whole.

How Families Cope With Chronic Illness - Watchtower ONLINE LIBRARY, <wol.jw.org/en/wol/d/r1/lp-e/102000363.>

After reviewing this source I got more information on how families cope. I also noticed that this source puts together verses from the bible, which I think is really reliable. It also gives questions families frequently ask doctors when they find out their loved one is diagnosed with an illness. This source helps me a lot because it gives a variety of information. It talks about the many ways someone can be supportive, so this can help me on how to be supportive to the families I talk to.

“Interviewing an individual to gain a family perspective with chronic illness : a clinical demonstration.” Free Library of Philadelphia, [San Francisco, California, USA] : Kanopy Streaming, <know.freelibrary.org/Record/2103858.> https://freelibrary.kanopystreaming.com/video/interviewing-individual-gain-family-perspective-chronic-illness-clinical-demonstration

At first I didn’t think this source would be reliable. Although this interview was about a man’s experience on chronic illness, it was still able to help be gather information. While watching this interview, they introduced the skills they would be talking about which included, coping strategies and impact on family. They also explained ways someone can cope even without family members, but how to on their own. During the interview, the doctor asked the patient many questions on how he coped, and how he felt about the loss while he was a young boy. In the end, this source was pretty useful for me.

Institute of Medicine (US) Committee on Health and Behavior: Research, et al. “Individuals and Families: Models and Interventions.” Health and Behavior: The Interplay of Biological, Behavioral, and Societal Influences., U.S. National Library of Medicine, 1 Jan. 1970, www.ncbi.nlm.nih.gov/books/NBK43749/.

This source shows how families and or the individuals that are diagnosed behave. An individual sometimes feel guilty when they’re diagnosed because of the many things their family has to go through in order to prepare for them. The many equipment they have to get, and the amount of money they have to gather.

Lawrence, Erika. “The Impact of Chronic Illness on the Family.” http://www.igliving.com/magazine/articles/IGL_2012-06_AR_The-Impact-of-Chronic-Illness-on-the-Family.pdf

This source provides informations on the different strategies to cope with a family member's illness and the impact on it. It not only gave information on how families cope, but how individuals, as well as couples together cope. It gave the many effective ways for both couples and families. A big thing I noticed, was family therapy. I could use this, to see whether the families go through family therapy together or even bring up the different ways I learned, to give them ideas on how to cope. In the end, this source was really helpful for me and I will be using it as a guideline when I visit the Ronald Mcdonald House.  

Rothenberg, Michael B. “The Effect of a Child’s Chronic Illness on the Family.” Psychosocial Family Interventions in Chronic Pediatric Illness, 1982, pp. 163–178., doi:10.1007/978-1-4684-4247-2_24. <https://link.springer.com/chapter/10.1007/978-1-4684-4247-2_24>

This source is a book called “The impact of Chronic Illness on the Family”. Not only does this source show the different ways to cope, but it also shows what the impacts are for the families. Not every family goes through the same thing, so there are many different  things that could happen. This source gave me a lot of information, and was very helpful with not only coping but also the impact it has.

“Saying Goodbye.” Saying Goodbye: Coping With a Loved One's Terminal Illness, www.helpguide.org/harvard/saying-goodbye.htm.

This source provides information on how to properly say goodbye and cope on a loved ones illness. This shows grief and the challenges that the family could face. The process of coping and grieving takes awhile. There’s many steps of these things. At first I didn’t think this source was reliable, but it gave me good information on my topic.

“Signs and Symptoms of Trauma - Causes and Effects.” PsychGuides.com, www.psychguides.com/guides/trauma-symptoms-causes-and-effects/.

This source shows the many causes and effects for Trauma on illness. It gives information about the signs and symptoms to know someone is diagnosed with trauma. Trauma is a really serious thing, and this source can help me know how to properly talk to the families, just in case they are sensitive about a certain topic or thing.

“When a Loved One is Terminally Ill.” When a Loved One is Terminally Ill: Talking About Death and Making End–of–life Decisions, www.helpguide.org/harvard/dealing-with-a-loved-ones-serious-illness.htm.

This source shows how families prepare for the worst when they know their loved one is diagnosed with an illness. They have to prepare financially, physically and emotionally. This source gives the many ways family does these things. This can help me put together information on my end product or slideshow.